Tag Archives: Fathers

Mother’s Day Weekend

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Dear Mom:

I miss you and, just between us, Mother’s Day is really all about you.

But CLSFOB (camp/law school FOB) helped me reach an epiphany.  We were talking before the weekend (she, too, is a mom) and she wished me a happy Mother’s Day.

I, of course, responded:

“It is about my mom and she is gone.”

“Wow, so [SOS] doesn’t celebrate you or anything?  It is just a sad day?”

“Well, I didn’t mean it that way…”

SIDEBAR:  Ok, yes, yes, I did.

“But he should be able to celebrate!! Does he feel the heaviness?”

SIDEBAR: OK, CLSFOB, I get it.  Sheeeesh.  I should introduce you to SNOBFOB. 

“Move on, Counselor, you’ve made your point.”

I was getting testy because CLSFOB hit a chord.  But she was right.  

So, this weekend, I have tried to be more open to taking my position as MOM on Mother’s Day. And it feels good.  Ok, not so good, but better than I thought.  But I am not going to say that CLSFOB is right again.  Nope.  Not gonna do that.

To tell you the truth, I feel a little like a mom with Dad.  And I think SOB does, too.

I had the “Dad call” this weekend.  SOB was in the ICU and saving lives (just not ours).  So, I had lunch with Dad on Saturday and we all went to the Metropolitan Museum of Art today.

I chronicle the days so BOB and SOB feel like they were there.  The emails are entitled “This Day in Dad”:

“Dear [SOB] and [BOB]:

I had lunch with Dad today. Dad tried to hide those scam solicitations [that target the elderly] from me when I picked him up. But I commenced a search and rescue mission with critical help from [home aide]. I rescued Dad from an entire shopping bag’s worth of scams and shams. In the midst of the junk, there were important papers. Aaargh.

We may need new night people. They do nothing apparently and Dad cleans up after them. They don’t help him with personal hygiene. That’s a big part of the job.  But, I don’t know if I can deal with trying out new people.  I am tired just thinking about that process.

Worked up an appetite by the time we got to the Coffee Shop of the Undead. I ordered a large Greek salad and a hamburger deluxe and the waiter asked if we expecting another person. I replied that I am quite hungry and quite capable of finishing both before my companions finished their meals. I didn’t disappoint.

Dad wondered why Sam wasn’t at the coffee shop.  I had a moment:  was Sam no longer UNdead?  But, phew, it turns out that he is still alive, but failing unfortunately.

We had a perfectly lovely lunch. After I left, he handed [home aide] a sweepstakes envelope with a check in it to mail. He didn’t want me to see it. So he is not as clueless as everyone thinks. She called me and I told her not to mail it.

Then, because I am a glutton for punishment, I went to ULOB’s bank branch to get more information for AROB’s nephew so he can have a proper paper trail of what was transferred to ULOB when AROB died.  I get why he is stressed out but I really want to introduce him to some “chill” meds.  Now I feel bad thinking that because it turns out he was spending the day with AROB’s newly discovered UNdead sister in the psychiatric facility.  He is a good and kind man. I am not as good and kind.

End of Report.

Love, [Blogger]”

Of course, these emails engender discussion:  BOB wants me to take away his checks (I did that once before and he just went to the bank and got more) because he can’t discern good charities from bad ones and he likes to enter sweepstakes. BOB worries that Dad is well intentioned but vulnerable and impaired.  SOB observes (correctly) that he likes to feel generous with charities but maybe he will accept some oversight (not so confident about this part of the assessment).  I think that he really needs to conserve resources but I cannot take away his checks but I don’t want him to think he is running out of money.  Too emasculating.  With no more emails flying, the debated ends.  Because I have the final say (for now), I render a reasoned decision (for now).

Decision for the day (mine):  We continue to run a loose ship, with BOB dissenting.  I have no extra time to be the enforcer.  It will not be perfect.  It just has to work.  Most of the time.  We will review the status quo weekly and re-calibrate as necessary. Signed, [Blogger], President of Dad, Inc.

*********************************************************************************************

Today, we had a great time at the Met.  SOS walked a lot with Dad.  They are quite bonded.  I can imagine how happy you would be seeing them together.

After the Met, we went to a coffee shop that just doesn’t cater to the Undead.  What a nice change in scenery, but the turn-over in big tables was not as fast.  At this coffee shop, the patrons probably buy green bananas.

********************************************************************************************

So, after almost 11 years, this was my first Mother’s Day where I accept wearing that mantle.  I will never forget you on Mother’s Day or on any other day, ever.  It is just that being mom to SOS and in loco parentis to Dad may entitle me to an honorable mention today and a little celebration.  Then, again, SOS didn’t make cards, so I tortured him and now I am not such a good mom.

I love you,

Blogger

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Minding the Elderly Can Age a Person

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Today, the paternal side of the Blogger family buried one of our own.  My cousin was not even 37.  Family members spanning nearly a century — 4 generations — were present, as if to beam a harsh light on the tragedy that my cousin would never grow old.

BOB, who flew in from Texas for the funeral, thought that we should visit Mom’s brother, Uncle L., the last surviving uncle of blogger (ULOB), and that he should meet ULOB’s paramour (POULOB).

SIDEBAR:  Why not make it the day a total beat-down?  In for a little hearbreak, in for a trifecta.   Like that penny and pound thing.

This was so last minute.  And I didn’t want ULOB to think that BOB would come to town and not see him (even though that does happen from time to time).  So, I call ULOB from the car on our way back from the funeral and tried to frame the narrative:

“Hi, Uncle, it’s [Blogger].  [BOB] just came into town at the last minute for a [paternal Blogger] family funeral.  We didn’t want to call to early to wake you [ULOB sleeps until noon].  We would like to stop by and visit this afternoon.”

“Can I invite [POULOB]?”

“Of course.  Does 4pm work?”

“See you then.”

Great.  Death. Destruction. Tears. Lamentations. And a visit to the apartment that is gross by the slums-of-Calcutta standards.  I guess I am not getting a nap today.

BOB and I walked [3 miles] to ULOB’s apartment.  It was good to talk to BOB.  I don’t think we have an hour to talk just the two of us in three decades.

But, we were running late.  So I called ULOB’s apartment.  No answer.  Hmmmm.  Odd.

We arrive at his building.  He lives on the fourth floor of a five story walk-up in what is formerly known as Hell’s Kitchen.  We buzz his intercom.  No answer.

I call again his phone again.  No answer.  BOB leans his palm on ULOB’s buzzer.  I go inside the first door (which is never locked) and start buzzing every apartment in the building until someone lets us in.

We walk up four flights to his apartment.  There is a radio blasting.  We go inside his apartment (don’t you mind the details), expecting to find a body.  BOB says helpfully, “you know, bad things happen in threes, so this would be event no. 2.”

SIDEBAR: BOB needs a refresher in the Blogger family protocol, as in “unhelpful comments in scary, potentially life and death situations are punishable by a different kind of scary, life and death situation.”  Rule No. 3, for those of you following in the handbook.

The place looks like it has been ransacked.  BOB is a little rattled, but I remind him that that is usually what the place looks like.  I am still calm.  I start to look around for a body.  The stench of 54 years of filter-less cigarettes would cover any smell of a decomposing body.

No body here.  Thank G-d.  But nobody here either, so he must be dead in the street.

BOB and I decide not to panic.  Instead, we sit at an outdoor cafe doing our version a TV crime drama stake-out, only with cocktails.  I watch his building while BOB looks for him along the street.

We leave countless more messages on ULOB’s message machine in case he shuffled in while traffic was stopped and a bus obscured my view.

ULOB doesn’t have a cell phone.  We don’t have any contact information on POULOB except her address and her phone number is unlisted.  (I tried.)  This is the time when I wish I didn’t avoid information about her and just embraced her, regardless of their relationship’s beginnings.  Sometimes, principles just bite you in the ass.

SOB knows POULOB’s phone number.  Except, SOB is in London. My phone is running out of juice. And I am rattling off phone numbers to BOB as my phone dies.

BOB calls SOB, “Hey, [SOB], [ULOB] is a no-show at his house.  But he isn’t dead IN his house.  We need POULOB’s number.  Oh, I love you, [BOB]by.”

We abandon our stake-out after 1.5 hours.  Police work is not for me, unless lubricated with a nice cabernet.  BOB goes to Dad’s to have dinner with him.  I go home, preparing myself to call hospitals or go to POULOB’s house and knock on the door.

I get home. The doorman hands me a message from ULOB and POULOB. They were here, thinking the gathering was here. The message says they are at a nearby restaurant. I RUN there.  We clear up the miscommunication.  POULOB says ULOB told her we were having a gathering either at 2, 3 or 4.  They opted for 4:15. Ok, I am not so devastated about missing them.

I say, “we were at a funeral, although I could understand the mix-up”.  Wow, cabernet is the opposite of a truth serum.  Because, who, in the world invites guests, who don’t know the deceased, to a post-funeral gathering?

We resolve the following things:

  • ULOB needs a cell phone.
  • POULOB needs all of our contact information and we, hers, because she is here to stay.  And she does take really good care of ULOB.
  • Nobody dies on my watch.  And when I say nobody, I also mean no body on my watch.

I did remember to text SOB that we were really sorry we gave her a heart attack, especially when she would get care in the UK hospital system.  I called Dad to tell him to tell BOB that all is well, but Dad already started cocktail hour, so at some point I ask him to pass the phone to his attendant, because I could not live another moment in loopy land.

This Abbott and Costello afternoon happened on the heels of the real tragedy — my young cousin’s untimely death.  Today I experienced universal grief, elderly confusion and existential anxiety, some at both ends of the spectrum of life.

For now, I am grateful to be in the middle.

 

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Role Reversal

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For those of you who are also dealing with this:

When you have sick relatives and you are the one mainly in charge — whether because of love, obligation and/or by default — there are no simple tasks, are there?  There is no streamlined order of command or ways to pay bills, right?  Or get the important mail sent to you?

And that power of attorney or trustee status that was the answer to these problems?  It only allows you to untangle SOME of the mess.

I know, I know.  All of the planning, those hard conversations, and the tears when the car keys were taken away were all supposed to get us to a point where everything that we COULD control was IN OUR control.  So, our parents and we didn’t have to worry about THESE things.

Parents are not good at giving up the control over finances, medical issues, etc.  And why should they? They have been doing for themselves for more than 60, maybe 70, years and doing fine.  Yes, but then time and age crept up slowly for some, and brutally fast for others, and all wasn’t fine anymore.

And because you needed us.  We, your children, your nieces and nephews, your dear friend’s children.  And we stood up.  But you don’t quite understand that you need us.  That is part of the disease or the injury.  You can’t keep up.  Things are going unpaid.  The house is looking unclean.  You are looking disheveled.  We need to get help in the house and we need to make sure the bills get paid.  Because we need you need to live in dignity, even if giving up decision-making is itself an indignity.

But parents are used to taking care of themselves, no matter what.  And a power of attorney or trustee status cannot prevent an elder from acting on his own, even to his detriment.  Dad called yesterday because people confused him on the phone about his credit card and his long term care.  He called me to contact these people to make it right.  I called him back after I made all the necessary transfers and reminded everyone again that I am the contact and my power of attorney is on file.  Dad didn’t tell me (did he remember?) that his muscle memory took over and he transferred funds over the phone and took care of it.  Maybe he didn’t understand what he did nor can he remember to tell me.  So I duplicated his efforts and while that isn’t bad necessarily, money moved at cross-purposes and, today, there was a crisis.

Trying to sort out the mess was an hours-long process.  Because every institution has its rules.  And every subgroup within an institution has its own inane rules.  So, while I am the designated person for financial decisions, not every bill or statement comes to me.  While I am designated as a notice party, nobody calls or writes.  And while part of the company accepts my status, the other part of the company has no record that I exist.  But maybe I would be interested in a Mastercard?  And, by the way, can I answer whether I was provided with excellent service.  Are you kidding me?

Too big to fail?  That isn’t the relevant question.  Too big to help?  Absolutely.

I requested fund transfer forms because I was going to yank all the money out of this behemoth.  Because I don’t have time for this.  Then the issues disappeared.

Give me a local bank, a local pharmacist, a local butcher, a local anything.  Because I need people who know my family and who can help me navigate the difficulties of trying to help Dad maintain his specter of “independence” (however much that independence is, in truth, circumscribed by his loving children).

His pride and my sanity are on the line.

P.S.:  Tomorrow we will discuss how we live with TOO MUCH information about our parents.

 

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Homeward Bound

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POB spent some time with Dad yesterday.  He kept telling her that he doesn’t feel as if he is home, even when he is sitting in his living room.  His living room for 50 years.

Often, he says, he gets confused and wonders: “How am I going to get home from here?”  And then either he remembers or his aide (or one of us) reminds him, “you are home.”  Then he relaxes.  But this repeats throughout the days.

Last night, when POB told me about the conversation, I had an unusual panic.  Does “home” mean something different for Dad?

Even though this has been Dad’s home for more than half of his life, Mom isn’t there, and his memories are hard to tease out of the recesses of his mind.  His kids visit, but we don’t live there anymore.  There are lovely aides helping him, but they are strangers.

Daddy, please stay just a little longer with us.  If “home” is some place else, don’t go “home” just yet.  Ok?  Stay here with us.  Because here is still where you live.

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Filling the adult shoes

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When we were young, my Dad always wore wing-tipped shoes — brown or black. 

 

 

 

 

 

He had one pair of Keds sneakers and several pairs of tuxedo shoes.  Maybe he had another pair of shoes for the weekends, but this was the 1960s after all.  And a man of my father’s generation didn’t wear jeans until the late 1970s and sneakers — gasp — only when old-style shoes were too tough on his aging feet.  Dad and his wing-tips.  That’s what men of a certain age wore.

I remember the weekly walk from synagogue after Sunday school and Dad’s racing me the last block home.  He wore his wing-tips and I wore my Mary-Janes (which I hated).  Dad and his wing-tips.  That’s what men of a certain age wore.  Even when playing with their kids.

Dad and his wing-tips.  I used to try to walk in them after he had taken them off and put on slippers (another thing that people haven’t done since the 1970s).  They were so heavy and unforgiving.  I used to clomp around and fall and get up and keep trying. 

In the early 1990s, Italian designers started selling women’s wing-tipped shoes.  More refined than the clunky saddle shoes of the prior decades.  I have several pairs in black and brown, although I went for a simpler look:

 

 

 

 

 

 

 

 

For years, I didn’t wear them because I thought I looked too dyke-y in them.  Since Dad’s fall, I wear them again.

If I am going to be as good and kind to him as he was to us, I need to walk in his shoes.  The shoes he wore when he had all the answers.   

 

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Stuck in the middle

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Wherever you are, you need to be somewhere else.  And whatever you are doing wherever you are, it is a little inadequate, a little late and a little unfocused.

This is the life of the sandwich generation.

I called Dad this morning and went over the plan for the day and who was visiting and what he needed to accomplish. 

“Are you coming?”  

“No, Dad, not today.  I am spending the day with SOS and we are going to the Met.” 

“You are choosing a museum over me?  Tell my grandson I am so sad that I might cry!” Dad said jokingly. 

Jokingly (but not fully joking) and quite manipulatively.  We have played this game before.  Dad doesn’t want me to feel bad after I hold firm to my decision.  He doesn’t mean to make me crazy or sad.  

But now it is different.  Dad is still full of life and he is being hemmed in by things beyond his control.  He is a prisoner of a few block radius around his apartment and the vagueness and forgetfulness of his mind in areas where he had his brain injury.   So, I want to cry and throw up.  Before this, the man could play a concerto on my emotional buttons.  Now, he is maestro.

But SOS is my priority.  We went to Arms and Armor because boys love their implements of destruction.  And, certain things about men don’t change from the middle ages to the present, as noted by the expanded “pocket” on this particular armor.  Front angle and side angle.

 

 

 

 

 

 

 

 

 

Too funny.

SOB and a family friend had lunch with Dad.  SOB did strong work this weekend, covering the “Dad call” so that I could chill a little and catch up on family and work.   I have the “Dad call” part of this week and next weekend. (We use medical terms because, as Jews, we act as if we are all doctors, actual licenses being irrelevant.)

And I will go over tomorrow for cocktail hour.  And no doubt he will want to dance a few turns with me before his make-believe scotch.  That man still dances better than I ever will.  And he remembers the songs and tunes of the Big Band Era better than most people.  He is quite a remarkable man.

So we will see whether he can go for a longer and further outing this week.  Maybe even to the Upper West Side for brunch next weekend. 

Speaking of sandwiches, today I had a pastrami and corned beef on rye.  Because if you are stuck in the middle, taking care of the older and the younger generations, a little soul food goes a long way.

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This Week in Dad

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Over the course of the week, Dad’s physical and mental state has improved at a miraculous rate.  He is the comeback kid. But he will never be the same or independent.  He tires quickly and when he is tired, he is confused.  

I learned many things this week about my father and me. 

Lesson 1:  I am in mourning for the end of his independence. 

He still thinks he can be independent again, which is uplifting and heartbreaking in the same moment.   

Lesson 2: Temporary is as temporary does. 

Dad kibbitzes with his home attendants.  He seems rather fond of them and they seem to dote on Dad.  But there is only one person with whom Dad will share a home and Mom is gone.  So, while these home attendant are a diversion for now, he views the situation as a temporary, necessary intrusion into his life.  But, I know temporary lasts until, looking back, you realize it was permanent.   So temporary is fine, as long as it is, in fact, permanent.

Lesson 3:  Unconditional love is tested both ways when a parent is declining.

I imagine we will have numerous conversations about whether and how much assistance he needs and some will not go well.  At some point in his miraculous recovery, my fiercely independent and proud father will be displeased  — righteously indignant, actually — at being told that the 24/7 care will not end.  And he will not understand our insistence on it.  And deep down he will know that we are in control.  Will he know that we are doing what we think is best and that we do what we do because we love him?  I never want Dad to feel let down by his kids.

Lesson 4:  I need to be the Grinch who stole Christmas.

It is my job to look for the chinks in his armor, to make sure that we have the systems in place to control for his deficits.  While I can be thrilled at his recovery, I cannot get lulled into a relaxed mindset.  His safety depends on my being the doomsday sayer.

Lessons 1 – 4 all together:  Being a parent to my father is among the scariest, saddest and most important roles of my life.

 

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Uh, oh, another “Dear Mom” blog

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Dear Mom:

I know you are watching the events as they unfold down here on Earth.  Dad is remarkable in the ability of his body to heal so quickly — and just days shy of his 92nd birthday.  Ok, the mind is another thing.  That is a bit of a mixed bag.

Dad’s week has been packed with life and all of its emotions, from heart-breaking to uplifting, from triumph to quiet desperation, from funny to painful indignity.  And we, the kids, whether in person or on the telephone, have been on the ride along with him.

We went from feelings of sheer terror in taking Dad for a walk around the block (would he fall?) to POB’s dancing with Dad in the house to the sublime — a soft shoe routine in the supermarket, he with his cane (and his home aide ready to catch him) and I with a new mop that we desperately needed.  But later he couldn’t get up from the table without help and was dizzy, so he needed a long recuperative nap.  So, we will do soft shoe when we can, but we aren’t ready to go on the road. We do what he can do and no more.

We spent days going through pictures, reminding him of the family.  He is getting really good at this.  He remembers you, without any sort of coaxing.  One of his home aides told me that Dad talks about you and how he is still married to you and still in love with you, no matter that you died 10 years ago.  He told her the secret — that you appear somewhere in all his paintings.  He knows your spirit lives in the house.  And, of course, your portrait remains as evidence that this is your home.

In a weird way, I think that the home aides are a blessing.  Dad can talk to them all day.  Now I realize what life has been like for Dad these last few years.  If Dad can’t go to the studio to sculpt (he hasn’t been able to for a few months) and he isn’t with us on the weekends, the days between are deafening silent and slow.  I wanted to cry for his loneliness.  But now he sings for his home aides, offers them a cocktail (which they refuse) and the house has noise.

But there are hard moments.  Moments filled with the indignity of aging and a child having to care for a parent as if he were a baby.  And, when he is discombobulated, the air seems to fill with a toxin that hurts my lungs.  There are also less profound crises, like the day there were no bananas for breakfast and Dad was not strong enough to go to the store or be left alone.  Imagine, a reasonably successful New York lawyer unable to answer client emails because she has to bring bananas for breakfast.  Still, he asked, “how much a pound did you pay?”  “Before or after I add in the cost of the cab to hand deliver these to you, Dad?”

At least today, there was levity amidst the crazy talk.  Aunt Glue and Cousins J and K came to visit.  Aunt Glue and Dad were both a little off, but they enjoyed their conversation.  The rest of us didn’t quite understand the conversation, but I tried to let go of reality and roll with it.  Cousin J tried to correct Aunt Glue’s somewhat vague statement, and I asked her, “at this table, what does it matter?”

Aunt Glue and Dad, the remnants of our greatest generation, stronger in body than in mind, gained fortitude and joy from each other’s presence.  Aunt Glue is the only one alive who knows to call Dad by his original, Yiddish, name, Nachum.  “So, Nachy”, she said, “tell me all.”  I wanted to live in that moment because she has said that in the same way for as long as I have been alive (and longer), when they were strong and infallible and blazing the frontier.  When Dad was Dad and you were alive.

At least Dad has you, always.  As do we, your children.  But, in these moments, I wonder why I had to grow up.  I love you, Mom.  And I love Dad, come what may.

Love, Blogger

 

 

 

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Things I learned today (and Phoenix was awesome)

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I learned why the health care debate is bullshit.  It is sterile and removed from reality.

When a family member is ill and you cannot care for him or her, you must rely on strangers.  Strangers are not always reliable; not because they don’t want to do their jobs but because there are so many in need that your loved one is not necessarily the first on the list.

So, health care is flawed.  It is a morass.  It is frustrating.  It isn’t the well-intentioned attendant’s fault; it isn’t the overwhelmed agency’s fault; it isn’t the government’s fault.  (Sure there are bad people out there, but let’s discount that factor for a moment.)  Illness is at fault.  It is a problem that we are not all health care professionals who can leave our jobs to care for our loved ones.   Forget Federal Medical Leave Act during bad economic times.  Most people are too scared that there will be some other pretext for the employer to fire them.

When you delegate, you lose control of the outcome.  That is why there was poison in toothpaste imported from China.  That is why we throw away electronics when they stop working because it is cheaper to buy new than to fix the old.

People don’t fit into an economic model.  There is value in keeping people healthy; there is joy in adding quality to the waning years.  There is pain when science keeps the body going after the mind and soul have left.

I have lived the cushy private system for only a few days and it is hell.  When a patient can’t help him or herself, then it doesn’t matter who is providing the service.  If you are lucky, you can telecommute and keep an eye on the situation and reassure your loved one, with your words, hell, with just your presence.  But most people are not so lucky.

So, don’t talk to me about vouchers or Medicare or the Great Solution.  When your family member is in need, there are no good answers.

DAD UPDATE:

Dad remembered my name today.  He was true to his word last night.  He also remembered a host of other crazy facts and information.  We all thought he earned that scotch tonight with his hors d’oeuvres.  (Ok, let’s be honest, club soda with a splash of the good stuff.)  Clap if you agree.  (Yes, we hear you.  Thanks.)

Don’t bet against Phoenix.  He is roaring from the ashes.

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Phoenix rises, then stumbles. Repeat.

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Take anti-nausea pills before reading.  It is a little like being a castaway at sea.

Dad came home yesterday afternoon.  He was relieved to be home.  There is an amazing “muscle memory” about being home.  He knew how to motor around the house to find the things he wanted even though he was wobbly on his feet and could not put the words together to talk to us.  Also, we ordered a wheelchair, a walker and a cane because we didn’t know his needs.

Shortly after he got home, he wanted very much to call the United Jewish Appeal but the reason made no sense.  And it was the Sabbath.  His frustration was rising and logic wasn’t working.  So I dialed POB’s cell and I said (actually, I was desperately directing her), “Dad needs to speak to the UJA, so pretend.”  I passed the phone to Dad, and turned up the volume so SOB and I could hear.  “Hello, Mr. [DOB], this is “Rachel” from the UJA.  Thank you for your pledge . . . .”  She went on until Dad said, “ok, thank you very much.” Dad was satisfied and almost looked as if he would nap . . .  Nah, no luck.

Sidebar:  POB should be nominated for an Academy Award, since she performed while on a crowded bus with SOS, who was quite confused.  (She told him that we were testing his phone skills and SOS loved the cloak and dagger of it.)

SOS was scared to see Grandpa injured.  We were all scared of the future.  BOB was busy cleaning out all of his junk mail and organizing recent files.  Man on a mission. We all found ways to soothe our individual terror at our new reality.

When SOS, POB and HOSOB arrived, we all gathered around and went through recent pictures to jog his memory.  SOB and I had previously gone out shopping and HOSOB brought some liquid relaxation (wine).  By this point, it was “cocktails and hors d’oeuvres” hour because that is the way one does things in Dad’s house.  Since he wasn’t so steady on his feet, we pretended to give him a “scotch” but it was club soda.  The upside of a little dementia — he thought it was scotch.

Cousin Gentle arrived later on.  By the time we ate dinner, he knew that he was surrounded by family, and very happily so, but only remembered the names of the eldest, Cousin Gentle, and the youngest, SOS.  Also, his evening attendant ate with us, so we could weave her into the fabric of the day (and she is lovely in any event).  BOB stayed until today, so at around 9:30, the rest could leave for much deserved rest.

Sidebar:  At this stage, rest is elusive.  Sleep is a non-starter.

The night was long and difficult according to BOB. And BOB looked like he hadn’t slept.

By morning, Dad was better, but still inconsistent in strength, gait and comprehension.  Dad was using the walker and BOB was playing in the wheelchair.  BOB challenged Dad to a race.  It was actually very funny to watch them go back and forth.  A little insanity amid pervasive insanity is very healing.  And it demonstrated that Dad’s personality is intact.  It is his memory that needs work.

He started to nod off after lunch and had a long nap. SOB and I went out to get supplies and some fresh air because we were either trying to keep Dad engaged or listen for any sign of a problem while he slept.  We saw this in the drug store and thought it captured our feelings — we just wanted to SCREAM out of fear, frustration, lack of control, uncertainty of the future, you name it:

And, then.  And, then.  Good ol’ Phoenix.

He woke up able to walk without any support but the real proof that Dad was Phoenix rising was that he did not go for the fake scotch at cocktail hour.  I had to put a little scotch in the club soda so there was a faint smell of liquor.  Dad was still not happy but mollified somewhat.

POB and SOS came over for a surprise visit at dinner because SOS wanted to see Grandpa and he was sad that SOB and I might be lonely and scared “alone” with Dad.

Sidebar:  I can take no credit for the soulfulness, generosity and sense of family that is in my son’s heart.  POB is responsible.

POB was talking to Dad and he had some good recall of random things.  And, he was even grousing about the fake cocktail.  I overheard this, and I said, “Dad, you have to earn that cocktail!!  Get strong, get steady, get your memory back!!”  Everyone laughed.  My father saluted me.  He knows his kids are his bosses — his essential personality shining through.

It was time for him to go to sleep. The attendant was going to help him wash up.

I kissed him and said, “Goodnight, Daddy, I love you.”

“Goodnight, my darling, I love you.”

“Can you tell me my name?”

He hesitated.  “Maybe tomorrow.”

“Ok, Daddy, maybe tomorrow.”

Maybe, tomorrow. 

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