Minding the Elderly Can Age a Person

Today, the paternal side of the Blogger family buried one of our own.  My cousin was not even 37.  Family members spanning nearly a century — 4 generations — were present, as if to beam a harsh light on the tragedy that my cousin would never grow old.

BOB, who flew in from Texas for the funeral, thought that we should visit Mom’s brother, Uncle L., the last surviving uncle of blogger (ULOB), and that he should meet ULOB’s paramour (POULOB).

SIDEBAR:  Why not make it the day a total beat-down?  In for a little hearbreak, in for a trifecta.   Like that penny and pound thing.

This was so last minute.  And I didn’t want ULOB to think that BOB would come to town and not see him (even though that does happen from time to time).  So, I call ULOB from the car on our way back from the funeral and tried to frame the narrative:

“Hi, Uncle, it’s [Blogger].  [BOB] just came into town at the last minute for a [paternal Blogger] family funeral.  We didn’t want to call to early to wake you [ULOB sleeps until noon].  We would like to stop by and visit this afternoon.”

“Can I invite [POULOB]?”

“Of course.  Does 4pm work?”

“See you then.”

Great.  Death. Destruction. Tears. Lamentations. And a visit to the apartment that is gross by the slums-of-Calcutta standards.  I guess I am not getting a nap today.

BOB and I walked [3 miles] to ULOB’s apartment.  It was good to talk to BOB.  I don’t think we have an hour to talk just the two of us in three decades.

But, we were running late.  So I called ULOB’s apartment.  No answer.  Hmmmm.  Odd.

We arrive at his building.  He lives on the fourth floor of a five story walk-up in what is formerly known as Hell’s Kitchen.  We buzz his intercom.  No answer.

I call again his phone again.  No answer.  BOB leans his palm on ULOB’s buzzer.  I go inside the first door (which is never locked) and start buzzing every apartment in the building until someone lets us in.

We walk up four flights to his apartment.  There is a radio blasting.  We go inside his apartment (don’t you mind the details), expecting to find a body.  BOB says helpfully, “you know, bad things happen in threes, so this would be event no. 2.”

SIDEBAR: BOB needs a refresher in the Blogger family protocol, as in “unhelpful comments in scary, potentially life and death situations are punishable by a different kind of scary, life and death situation.”  Rule No. 3, for those of you following in the handbook.

The place looks like it has been ransacked.  BOB is a little rattled, but I remind him that that is usually what the place looks like.  I am still calm.  I start to look around for a body.  The stench of 54 years of filter-less cigarettes would cover any smell of a decomposing body.

No body here.  Thank G-d.  But nobody here either, so he must be dead in the street.

BOB and I decide not to panic.  Instead, we sit at an outdoor cafe doing our version a TV crime drama stake-out, only with cocktails.  I watch his building while BOB looks for him along the street.

We leave countless more messages on ULOB’s message machine in case he shuffled in while traffic was stopped and a bus obscured my view.

ULOB doesn’t have a cell phone.  We don’t have any contact information on POULOB except her address and her phone number is unlisted.  (I tried.)  This is the time when I wish I didn’t avoid information about her and just embraced her, regardless of their relationship’s beginnings.  Sometimes, principles just bite you in the ass.

SOB knows POULOB’s phone number.  Except, SOB is in London. My phone is running out of juice. And I am rattling off phone numbers to BOB as my phone dies.

BOB calls SOB, “Hey, [SOB], [ULOB] is a no-show at his house.  But he isn’t dead IN his house.  We need POULOB’s number.  Oh, I love you, [BOB]by.”

We abandon our stake-out after 1.5 hours.  Police work is not for me, unless lubricated with a nice cabernet.  BOB goes to Dad’s to have dinner with him.  I go home, preparing myself to call hospitals or go to POULOB’s house and knock on the door.

I get home. The doorman hands me a message from ULOB and POULOB. They were here, thinking the gathering was here. The message says they are at a nearby restaurant. I RUN there.  We clear up the miscommunication.  POULOB says ULOB told her we were having a gathering either at 2, 3 or 4.  They opted for 4:15. Ok, I am not so devastated about missing them.

I say, “we were at a funeral, although I could understand the mix-up”.  Wow, cabernet is the opposite of a truth serum.  Because, who, in the world invites guests, who don’t know the deceased, to a post-funeral gathering?

We resolve the following things:

  • ULOB needs a cell phone.
  • POULOB needs all of our contact information and we, hers, because she is here to stay.  And she does take really good care of ULOB.
  • Nobody dies on my watch.  And when I say nobody, I also mean no body on my watch.

I did remember to text SOB that we were really sorry we gave her a heart attack, especially when she would get care in the UK hospital system.  I called Dad to tell him to tell BOB that all is well, but Dad already started cocktail hour, so at some point I ask him to pass the phone to his attendant, because I could not live another moment in loopy land.

This Abbott and Costello afternoon happened on the heels of the real tragedy — my young cousin’s untimely death.  Today I experienced universal grief, elderly confusion and existential anxiety, some at both ends of the spectrum of life.

For now, I am grateful to be in the middle.

 

Lost and Found

I left off about my aunt’s sister in my blog entry: http://40andoverblog.com/?p=5014.  I have learned much since but it was hard for me to reconcile the information.  My aunt’s blood nephew found his other aunt, thought dead for so many years, in an institution in New York City.

My aunt’s nephew, whom I want to claim as my family, is a good man.  His mother’s papers left no clue, either, that a sister was alive.  He is trying to do the right thing in a fractured family.  He is also trying to find out about his family.  Only a scrap of paper in my aunt’s files gave him a clue an aunt might be alive and he followed the trail until he found her.

She is 88 years-old.  She was never “quite right” in her youth and her mental state has deteriorated beyond any ability to communicate.  (Would she have deteriorated so, if she had family to support her?)  She can provide no information about the family nor, we think, can she experience any solace that, after so many decades, a man she never knew existed came to claim her as his family and do the right thing.  At long last.

But my newly-minted cousin can’t undo the decades of neglect by siblings — both his mother and my aunt — who lived within miles of her.

I asked my uncle yesterday, “how could this be that Aunt [blank] had a sister who needed help?”  My uncle shrugged.  He had no idea that everyone wasn’t dead.  No one asked questions “in the old days”.

At long last, someone stood up for this woman.  But it was too long in coming.  Far too long to make a difference.

Now the weight of the tragedy is on our generation.

We must teach our children: Never again.  Never ever again.

The Sun Will Come Out Next Week

I have decided that my sad, ponderous, navel-gazing blog entries will end next week. Come this time next Saturday, I will be outraged, outrageous, funny (sometimes), weird, providing too much information, and otherwise being my usual inappropriate self on my blog.

As soon as Aunt R is buried (finally) tomorrow, my dear friend’s 53 year-old brother is buried on Monday and we commemorate Mom’s TENTH Yahrzeit on Friday, I believe that the pall will lift.  And, maybe, I will entitle my entry next Saturday, “The Day After a Fortnight of Three Funerals, a Brain Injury, and No Weddings”.

Nothing on that day will make Dad healthy or sane again, or reverse Uncle L’s precipitous decline since Aunt R’s death on Christmas Day, but there will be, G-d willing, a respite from seemingly endless death and destruction and chaos.

I am still learning this hard lesson of life:  as I get older, I will lose people — sometimes a few at a time — and still I must balance these gut-wrenching events with laughter, silliness and irreverence.   (And, in fact, there have been some very comical moments during these trying times that can only be told after the passage of time.)

But, learn, I must and I will.  Because that is the only way I can survive and see the beauty and fun and happiness in my life (for which I am eternally grateful).  Otherwise, the pain will consume me, and dim the lights in my eyes and estrange my friends and family.

And then, I will have only succeeded in adding another casualty to the list of those loved ones who are dead or dying: ME.

 

Up to bat

In these days in December, the world is often too much with me.  So much more so this year.

This is the tenth anniversary of Mom’s death, HOSOB lost both his parents in this year, Dad and Aunt Glue are both failing.  So, frankly, are the remnants of Mom’s family. Their deaths will seal a generation.  They were the first ones born on American soil and they laid the foundations for our generation to grow and thrive.  We stand on their shoulders.

SOB and I know that we, along with our many first cousins, will soon assume the mantel of our family’s eldest generation.  The ones who are supposed to know everything, have the wisdom of the ages, the memories and secrets of the past generations, and the answers to the questions (whatever they may be) and, yes, the next wave of those to leave this earth (G-d willing). We are up to bat in a baseball game, as it were.

It is only now that these giants of my parents’ generation seem so young and human.  Now I understood that Mom and Dad and the uncles and the aunts were as clueless then as are we now.  The mantra, just keep moving because it is better than running in place or, worse, standing still, is still the mantra of our generation.

As long as Dad and Aunt Glue are still alive, there is always the illusion (although, not the reality) that there are elders who know more, who can bless us and what we do, and who can lead us out of the darkness and into the light.

But the truth is that wisdom comes from reflecting on the past.  Humility comes from failure.  Regret comes from somehow knowing if you were sure enough of your convictions and felt strong enough to press your point of view, the outcome would have been better.

The lessons of the generations that must be learned again by each succeeding generation.  Over and over, until the end of time.

This is life and its journey.  These are some of the immutable facts that govern the species.

One day, maybe this will change.  Until then, I will try to act with kindness, with humility and with the memory of those who came before me — what they did right and what went terribly wrong.

 

 

Whence comes the light out of this darkness?

Last night, at our family Chanukah gathering, my cousin and I got into a conversation about the shooting in Newtown.  His premise was that we were being egocentric about this being a tragedy in comparison to what happens the world over — and especially in comparison to the children who die each day from our drone warfare.

I accept all he says as true.  If the United States is killing children, then those who order those attacks are war criminals.  But, just because it happens the world over, doesn’t mean that we should just sit back, throw our hands up and look away.

I cannot change Afghanistan or Congo or Somalia or . . . fill in the blank.  But I can stop my neighbor or my fellow American from spewing NRA-sponsored platitudes.

It must start somewhere.

I asked my cousin, “what am I, as a parent, to do?  Just put this in a larger geo-political context and just accept that human life is cheap?”  “My job,” I told him, “is to protect my child.  And I am not sure that I can do that when mentally ill people have access to guns.”  “Well,” he said, “you can tell your children that you will try to keep them safe but you can’t promise.”

OK OK OK OK OK OK.

My child deserves my unconditional promise that I will keep him safe.  Every child, the world over, deserves his or her parent’s unconditional promise.

Now, the work begins:

What do I need to do to make that unconditional promise to my child?

Stand up to the conventional wisdom.  People with guns kill more people than people without guns.  And, as a society, allowing a mentally ill person to buy (or have access to) a gun is the same as everyone of us driving the shooter to the school and giving him extra ammunition.  We all need to point the finger in the mirror.

Yeah, we need to solve the fiscal cliff and avoid upsetting the Republicans.  Yes, we need to tiptoe around the NRA with its $250,000,000 lobbyist fund.  Yes, we need to wait for someone to do something.

BULL SHIT.

I have a promise to keep.  And, I better get busy.

Marching, donating, talking to people and pressuring our political leaders.

And be ready to throw myself in the way of a bullet spray should it come to that.

Lunchtime in the Coffee Shop of the Living Dead

I went down for a quick lunch with Dad.  We went to a nearby place that isn’t good, has bad service and smells like a bad diner.  But it is popular for the over-senile/decrepit set because it is a close walk from many once-bustling-high-rises-now-de-facto-old-age-homes (welcome to the Sutton Place area).   At the diner, there is a special area for canes and walkers, once the elder has been seated.  There are less chairs available than one would think necessary because — well — the proprietors need to accommodate wheelchairs. 

Dad looks better than most there. 

As we are looking at the menu, he says, “I don’t remember when I last had a hamburger.” 

Sidebar:  I think BUT DO NOT SAY, “Of course, you don’t remember, Dad.  It was last Saturday when we had this same conversation at the other diner, you know the one that is far enough away so there are fewer undead people there?  You had a hamburger.”

Still, Dad sometimes surprises me by retaining information from one day to the next.  “How was POB’s job interview?” he asked.  Whoa, POB told him about it on Thursday.  Awesome job, Dad.

I know many of the peope in the Diner of the Living Dead from the neighborhood.  I grew up here.  One, who is Dad’s friend, came over and wanted to talk to me only, almost ignoring Dad and Dad’s health aide (are people invisible?). 

Odd because he is usually a warm and friendly, if homophobic, guy. 

He was clearly in despair.  He needed home heath care information for his companion of decades.  Her kids were handling matters without talking to him and he didn’t know what to do.  He didn’t even bother to brag about his daughter’s life as a married, wealtlhy, successful, procreative heterosexual.  Now, that was a red flag for how the situation has deteriorated.

I listened and gave him what information I could.  He seemed unable to cope with the little I was able to offer.  I will follow up with him but I think he needs care, too. 

Sidebar: I might have to call his daughter.  I will start the conversation with, “as a married, well-to-do (before the crash), successful (before the crash), procreative (after a fashion) homosexual to you, the person I was supposed to be: get your ass back to New York and take care of your dad.” 

After the conversation, Dad said in a sad but resigned way, “he doesn’t look or sound so good.”  I nodded. 

And then I screamed so Dad could hear (relying on the deafness of those around me):

“Dad, you are doing so much better and you had a brain bleed that shorted out some electricity!!” 

We are nothing if not blunt.

Things I learned today (and Phoenix was awesome)

I learned why the health care debate is bullshit.  It is sterile and removed from reality.

When a family member is ill and you cannot care for him or her, you must rely on strangers.  Strangers are not always reliable; not because they don’t want to do their jobs but because there are so many in need that your loved one is not necessarily the first on the list.

So, health care is flawed.  It is a morass.  It is frustrating.  It isn’t the well-intentioned attendant’s fault; it isn’t the overwhelmed agency’s fault; it isn’t the government’s fault.  (Sure there are bad people out there, but let’s discount that factor for a moment.)  Illness is at fault.  It is a problem that we are not all health care professionals who can leave our jobs to care for our loved ones.   Forget Federal Medical Leave Act during bad economic times.  Most people are too scared that there will be some other pretext for the employer to fire them.

When you delegate, you lose control of the outcome.  That is why there was poison in toothpaste imported from China.  That is why we throw away electronics when they stop working because it is cheaper to buy new than to fix the old.

People don’t fit into an economic model.  There is value in keeping people healthy; there is joy in adding quality to the waning years.  There is pain when science keeps the body going after the mind and soul have left.

I have lived the cushy private system for only a few days and it is hell.  When a patient can’t help him or herself, then it doesn’t matter who is providing the service.  If you are lucky, you can telecommute and keep an eye on the situation and reassure your loved one, with your words, hell, with just your presence.  But most people are not so lucky.

So, don’t talk to me about vouchers or Medicare or the Great Solution.  When your family member is in need, there are no good answers.

DAD UPDATE:

Dad remembered my name today.  He was true to his word last night.  He also remembered a host of other crazy facts and information.  We all thought he earned that scotch tonight with his hors d’oeuvres.  (Ok, let’s be honest, club soda with a splash of the good stuff.)  Clap if you agree.  (Yes, we hear you.  Thanks.)

Don’t bet against Phoenix.  He is roaring from the ashes.

Phoenix rises, then stumbles. Repeat.

Take anti-nausea pills before reading.  It is a little like being a castaway at sea.

Dad came home yesterday afternoon.  He was relieved to be home.  There is an amazing “muscle memory” about being home.  He knew how to motor around the house to find the things he wanted even though he was wobbly on his feet and could not put the words together to talk to us.  Also, we ordered a wheelchair, a walker and a cane because we didn’t know his needs.

Shortly after he got home, he wanted very much to call the United Jewish Appeal but the reason made no sense.  And it was the Sabbath.  His frustration was rising and logic wasn’t working.  So I dialed POB’s cell and I said (actually, I was desperately directing her), “Dad needs to speak to the UJA, so pretend.”  I passed the phone to Dad, and turned up the volume so SOB and I could hear.  “Hello, Mr. [DOB], this is “Rachel” from the UJA.  Thank you for your pledge . . . .”  She went on until Dad said, “ok, thank you very much.” Dad was satisfied and almost looked as if he would nap . . .  Nah, no luck.

Sidebar:  POB should be nominated for an Academy Award, since she performed while on a crowded bus with SOS, who was quite confused.  (She told him that we were testing his phone skills and SOS loved the cloak and dagger of it.)

SOS was scared to see Grandpa injured.  We were all scared of the future.  BOB was busy cleaning out all of his junk mail and organizing recent files.  Man on a mission. We all found ways to soothe our individual terror at our new reality.

When SOS, POB and HOSOB arrived, we all gathered around and went through recent pictures to jog his memory.  SOB and I had previously gone out shopping and HOSOB brought some liquid relaxation (wine).  By this point, it was “cocktails and hors d’oeuvres” hour because that is the way one does things in Dad’s house.  Since he wasn’t so steady on his feet, we pretended to give him a “scotch” but it was club soda.  The upside of a little dementia — he thought it was scotch.

Cousin Gentle arrived later on.  By the time we ate dinner, he knew that he was surrounded by family, and very happily so, but only remembered the names of the eldest, Cousin Gentle, and the youngest, SOS.  Also, his evening attendant ate with us, so we could weave her into the fabric of the day (and she is lovely in any event).  BOB stayed until today, so at around 9:30, the rest could leave for much deserved rest.

Sidebar:  At this stage, rest is elusive.  Sleep is a non-starter.

The night was long and difficult according to BOB. And BOB looked like he hadn’t slept.

By morning, Dad was better, but still inconsistent in strength, gait and comprehension.  Dad was using the walker and BOB was playing in the wheelchair.  BOB challenged Dad to a race.  It was actually very funny to watch them go back and forth.  A little insanity amid pervasive insanity is very healing.  And it demonstrated that Dad’s personality is intact.  It is his memory that needs work.

He started to nod off after lunch and had a long nap. SOB and I went out to get supplies and some fresh air because we were either trying to keep Dad engaged or listen for any sign of a problem while he slept.  We saw this in the drug store and thought it captured our feelings — we just wanted to SCREAM out of fear, frustration, lack of control, uncertainty of the future, you name it:

And, then.  And, then.  Good ol’ Phoenix.

He woke up able to walk without any support but the real proof that Dad was Phoenix rising was that he did not go for the fake scotch at cocktail hour.  I had to put a little scotch in the club soda so there was a faint smell of liquor.  Dad was still not happy but mollified somewhat.

POB and SOS came over for a surprise visit at dinner because SOS wanted to see Grandpa and he was sad that SOB and I might be lonely and scared “alone” with Dad.

Sidebar:  I can take no credit for the soulfulness, generosity and sense of family that is in my son’s heart.  POB is responsible.

POB was talking to Dad and he had some good recall of random things.  And, he was even grousing about the fake cocktail.  I overheard this, and I said, “Dad, you have to earn that cocktail!!  Get strong, get steady, get your memory back!!”  Everyone laughed.  My father saluted me.  He knows his kids are his bosses — his essential personality shining through.

It was time for him to go to sleep. The attendant was going to help him wash up.

I kissed him and said, “Goodnight, Daddy, I love you.”

“Goodnight, my darling, I love you.”

“Can you tell me my name?”

He hesitated.  “Maybe tomorrow.”

“Ok, Daddy, maybe tomorrow.”

Maybe, tomorrow. 

In a flash

It is day three of the second worst ordeal of my life.  The first was the death of my mother.

On Monday, Dad came to Rosh HaShanah luncheon — cheery as always, gracious as always, happy to be with family, as always.  Lest you think he was an angel on earth, he did hold forth as to matters of politics, HOSOB’s painting, or poorly behaved people in his congregation.  He doesn’t say anything in a catty way; as to the latter category, he merely sees their inadequacies as explanation of their behavior.

As the lunch wound down, we all said our goodbyes.  We all kissed and hugged Dad and wished him a happy and healthy new year.  He wished us the same with a force that can only come from a parent to child.  It was not unusual.  No portents of the coming events.

SOB and I often talk about that one day when Dad is late to a dinner or doesn’t pick up the phone.  That one day when Dad leaves us.  We always wanted it to be quick and painless – a coda for a life well-lived and a fortunate man who shared his good fortune with others.

We were not prepared for a call that Dad collapsed in the street (on his way to a doctor’s appointment) and had a huge contusion on his head and some bleeding into his brain.  SOB and I rushed to the hospital.  As the day wore on, the confusion seemed more pronounced and settled.  He knows us but he doesn’t really except that he is calm with us and he trusts us.  So, there is some comprehension through the haze.  And his essential personality is intact.  He is a lovely man and the nurses are happy to take care of someone who says please and thank you and generally grateful for the help.

Dad is in ICU and there is a kids’ playroom, so the nurse gave us a ball to throw with him that first day.

Final score:  Reflexes: 90%;  Cognition: 0%; His humanity: 100%.

For day two, he mostly slept, with notable interruptions of bursts of songs from the Big Band years.  The nurses love it but, then again, they haven’t heard Dad’s limited set for as many years as we have.  Late that night he got confused and fell.

Day three started with physical therapy.  He can walk, with assistance.  He had a vague sense of POB and me.   He quickly fell back to asleep.  He slept through an echo-cardiogram (which looked good even to a non-doctor).  He had another round of physical therapy.  He walked fast and steady.  And he did call SOB by name (no, he does not call his eldest daughter “SOB”).  I hope the anti-seizure medication will wear off because it is adding to his confusion.  He seems to remember us by name now.  A few minutes have passed.  Ok, not so much any more. Reflexes: 30%; Cognition: 0.5%; His humanity: steady at 100%.

But wait there is more.  Today, the Kumbaya Guitar Lady/The Singing Nun came by because she heard that Dad likes to sing.  Fortunately, he slept through it.  We, however, could not.

While Dad slept, we spoke with nursing services and got things in order for Dad.

Then I called his long term care carrier.  After one hour of terrible telephone music, only interrupted by being transferred from claims to intake to woman from hell, I learned that long term care kicks in after 100 days of 24/7 care diagnosis.

“So, if Dad is still alive, we’ll talk,” I said.

“Oh, no, someone will contact you in 5 business days to go over everything we just went over.”

“But we just went over everything, didn’t we? And what if I am unavailable when the  call comes?”

“No problem, m’am, you can schedule the call.”

OK, I thought, let’s schedule a call for a hypothetical need that 3.5 months from now and they won’t pay the full freight. “Great, mornings are best for me —“

“Oh, no, m’am,” she interrupted, “you can’t schedule with ME.  When you missed the first call, you can call back to reschedule.  But we promise that we will make the first call within 5 business days.”

Oh, great.  “Take your time, really,” I said.

It was 5 pm on a Friday and the private nurse service hasn’t called.  So I called the service.

“Your call is important to us so please continue to hold, or if you would like, leave a message and we will return the call in 30 minutes.”

Really?  Nah.  So, I wait on the line.   After hearing those words not less than 9 times, I have imagined that the recording said, “if you are a patient and have died while waiting for us to answer, please accept our condolences.”  Actually, they were lovely when I finally reached a human.

So now we need to have someone manage the care that Dad needs.  A house manager, as it were.  We can sit with him and talk to him and feed him, but fill out the forms?  Are you kidding me?

So, SOB, POB and I chat while Dad is sleeping.  We discuss that HOSOB should bring the painting that Dad critiques and tell Dad that he won’t change the size of the car in the street scene.  Just get it off his chest.  Or maybe HOSOB can tell Dad about the dangers of fracking, because while we agree with him, we don’t need the details.  At least not now, when we can only focus on Dad and, possibly, showering and brushing our teeth.

BOB arrived and we sat with Dad through dinner and for a while afterward.  Dad was awake but confused.  BOB got to do the manly things that we girls hesitate to do so as to give Dad some privacy and dignity.

Sidebar:  BOB asked Dad if he was sleeping well in the hospital, and Dad nodded yes.  This surprised BOB because unfortunately he has been hospitalized a few times and can never get a good night’s sleep.  SOB offered matter-of-factly, “sleeping well in a hospital requires a brain injury”.  We say the craziest things when we have to wear hair-nets and sterilized robes, while sitting on in our Dad’s room in the ICU Burn unit because there are no beds in regular ICU.  All these plastic surgeons running around and my father is in bad shape and I have to stop from thinking, “should I ask someone about my droopy eyelids?”

So, what have we learned today: brain bleeds are bad but if you have one you can sleep soundly in a hospital and everyone looks ugly in hair-nets.  Was this knowledge really necessary? Nooooooooooooooooo.

I always worried how Dad would die.  But I never worried that there would be anything left unsaid.  I am lucky that way.

More on the Basic Foundations

Our camp alma mater starts with “[t]he basic foundations of Wingate are expressed in what we advocate: be kind to others, know oneself, value knowledge and strive to create….”

Today I tried to live up to the first principle: be kind to others.

First a little back story that Wingaters know because I posted on our super-secret-decoder-ring-required Facebook page (with some edits):

Last night, I hopped the bus from the gym to home. It was 9:15pm. There was a confused elderly lady on the bus who was talking to the bus driver.  The bus driver was impatient and short with this woman and dismissed her with, “switch buses at 110th Street for the M4″.  OK, great.  Really helpful, Ms. Bus Driver.

The old woman, Joan (as I later learned), seemed concerned that she would navigate this transfer successfully.  She kept asking others on the bus, “is this 110th?”.  So, I piped up that I was getting off at her stop (not true) and would help her make the transfer.

I couldn’t bare the thought of a confused person with limited night vision trying to find the bus stop around the corner from where the bus driver let us off.

I thought this woman could have been my mother if she were still alive.  She is, in fact, the mother of two (as I later learned). But, all that matters is that she is a person in the world whose mind and body were failing and who needed a helping hand.

I waited with her until the bus came because she wouldn’t let me pay for a cab. I think she wanted the company.  As we chatted, she told me about her life, her late husband, her children.  She was a school administrator at Trinity School in New York City.  She told me her name and where she lived.  She kept repeating her phone number so I could call her.  She gave me, as a stranger, too much information for her own safety.  But her loneliness made my heart ache, so when she asked for my business card, I gave it to her.

I tracked down one of Joan’s children on the Internet and called him this morning to tell him that his mother was traveling late last night, and she was confused, lost and alone. He is aware of the problem but “she won’t listen”. He said, short of committing her, there was nothing he could do. I tried to develop a rapport by talking about my elderly and lonely dad and how we kids navigate this situation.  He sighed and hmmm’ed.  I said she seemed very lonely and I asked her when he last saw her. He said FIVE years and that should just show me how stubborn she was and how he HAD to throw in the towel. Really? Painful? yes. Give up? No. Inexcusable.

His sister is supposed to take care of things now. She is at Johns Hopkins in Baltimore (Joan told me). I don’t know her married name and he wouldn’t tell me. I told him about services in Joan’s area.  I asked him to please tell his sister what happened.

I know he will do nothing. But she has my business card so she may call.  If she remembers who I am.

I shared this with my Wingate camp friends.  One commented, “Do parents give up on children? No.  Children shouldn’t give up on them.”  Another said, “I know very good geriatricians and helpers in her area.  I can give you names.”  SOB offered names for a psychological evaluation at a local hospital.  Others chimed in their support.

It was hard to hear the sadness in Joan’s voice, experience the forgetfulness of Joan’s mind and see the fear in Joan’s eyes.  It is scary to think that Joan might call me and draw me into her world.  Extending a helping hand is harder than writing a check.  It can getting messy, frustrating and time-consuming.

The basic foundations of Wingate are guiding principles for living a purposeful and enriched life, not an easy life.  Step 1: Be kind to others.