Phoenix rises, then stumbles. Repeat.

Take anti-nausea pills before reading.  It is a little like being a castaway at sea.

Dad came home yesterday afternoon.  He was relieved to be home.  There is an amazing “muscle memory” about being home.  He knew how to motor around the house to find the things he wanted even though he was wobbly on his feet and could not put the words together to talk to us.  Also, we ordered a wheelchair, a walker and a cane because we didn’t know his needs.

Shortly after he got home, he wanted very much to call the United Jewish Appeal but the reason made no sense.  And it was the Sabbath.  His frustration was rising and logic wasn’t working.  So I dialed POB’s cell and I said (actually, I was desperately directing her), “Dad needs to speak to the UJA, so pretend.”  I passed the phone to Dad, and turned up the volume so SOB and I could hear.  “Hello, Mr. [DOB], this is “Rachel” from the UJA.  Thank you for your pledge . . . .”  She went on until Dad said, “ok, thank you very much.” Dad was satisfied and almost looked as if he would nap . . .  Nah, no luck.

Sidebar:  POB should be nominated for an Academy Award, since she performed while on a crowded bus with SOS, who was quite confused.  (She told him that we were testing his phone skills and SOS loved the cloak and dagger of it.)

SOS was scared to see Grandpa injured.  We were all scared of the future.  BOB was busy cleaning out all of his junk mail and organizing recent files.  Man on a mission. We all found ways to soothe our individual terror at our new reality.

When SOS, POB and HOSOB arrived, we all gathered around and went through recent pictures to jog his memory.  SOB and I had previously gone out shopping and HOSOB brought some liquid relaxation (wine).  By this point, it was “cocktails and hors d’oeuvres” hour because that is the way one does things in Dad’s house.  Since he wasn’t so steady on his feet, we pretended to give him a “scotch” but it was club soda.  The upside of a little dementia — he thought it was scotch.

Cousin Gentle arrived later on.  By the time we ate dinner, he knew that he was surrounded by family, and very happily so, but only remembered the names of the eldest, Cousin Gentle, and the youngest, SOS.  Also, his evening attendant ate with us, so we could weave her into the fabric of the day (and she is lovely in any event).  BOB stayed until today, so at around 9:30, the rest could leave for much deserved rest.

Sidebar:  At this stage, rest is elusive.  Sleep is a non-starter.

The night was long and difficult according to BOB. And BOB looked like he hadn’t slept.

By morning, Dad was better, but still inconsistent in strength, gait and comprehension.  Dad was using the walker and BOB was playing in the wheelchair.  BOB challenged Dad to a race.  It was actually very funny to watch them go back and forth.  A little insanity amid pervasive insanity is very healing.  And it demonstrated that Dad’s personality is intact.  It is his memory that needs work.

He started to nod off after lunch and had a long nap. SOB and I went out to get supplies and some fresh air because we were either trying to keep Dad engaged or listen for any sign of a problem while he slept.  We saw this in the drug store and thought it captured our feelings — we just wanted to SCREAM out of fear, frustration, lack of control, uncertainty of the future, you name it:

And, then.  And, then.  Good ol’ Phoenix.

He woke up able to walk without any support but the real proof that Dad was Phoenix rising was that he did not go for the fake scotch at cocktail hour.  I had to put a little scotch in the club soda so there was a faint smell of liquor.  Dad was still not happy but mollified somewhat.

POB and SOS came over for a surprise visit at dinner because SOS wanted to see Grandpa and he was sad that SOB and I might be lonely and scared “alone” with Dad.

Sidebar:  I can take no credit for the soulfulness, generosity and sense of family that is in my son’s heart.  POB is responsible.

POB was talking to Dad and he had some good recall of random things.  And, he was even grousing about the fake cocktail.  I overheard this, and I said, “Dad, you have to earn that cocktail!!  Get strong, get steady, get your memory back!!”  Everyone laughed.  My father saluted me.  He knows his kids are his bosses — his essential personality shining through.

It was time for him to go to sleep. The attendant was going to help him wash up.

I kissed him and said, “Goodnight, Daddy, I love you.”

“Goodnight, my darling, I love you.”

“Can you tell me my name?”

He hesitated.  “Maybe tomorrow.”

“Ok, Daddy, maybe tomorrow.”

Maybe, tomorrow. 

In a flash

It is day three of the second worst ordeal of my life.  The first was the death of my mother.

On Monday, Dad came to Rosh HaShanah luncheon — cheery as always, gracious as always, happy to be with family, as always.  Lest you think he was an angel on earth, he did hold forth as to matters of politics, HOSOB’s painting, or poorly behaved people in his congregation.  He doesn’t say anything in a catty way; as to the latter category, he merely sees their inadequacies as explanation of their behavior.

As the lunch wound down, we all said our goodbyes.  We all kissed and hugged Dad and wished him a happy and healthy new year.  He wished us the same with a force that can only come from a parent to child.  It was not unusual.  No portents of the coming events.

SOB and I often talk about that one day when Dad is late to a dinner or doesn’t pick up the phone.  That one day when Dad leaves us.  We always wanted it to be quick and painless – a coda for a life well-lived and a fortunate man who shared his good fortune with others.

We were not prepared for a call that Dad collapsed in the street (on his way to a doctor’s appointment) and had a huge contusion on his head and some bleeding into his brain.  SOB and I rushed to the hospital.  As the day wore on, the confusion seemed more pronounced and settled.  He knows us but he doesn’t really except that he is calm with us and he trusts us.  So, there is some comprehension through the haze.  And his essential personality is intact.  He is a lovely man and the nurses are happy to take care of someone who says please and thank you and generally grateful for the help.

Dad is in ICU and there is a kids’ playroom, so the nurse gave us a ball to throw with him that first day.

Final score:  Reflexes: 90%;  Cognition: 0%; His humanity: 100%.

For day two, he mostly slept, with notable interruptions of bursts of songs from the Big Band years.  The nurses love it but, then again, they haven’t heard Dad’s limited set for as many years as we have.  Late that night he got confused and fell.

Day three started with physical therapy.  He can walk, with assistance.  He had a vague sense of POB and me.   He quickly fell back to asleep.  He slept through an echo-cardiogram (which looked good even to a non-doctor).  He had another round of physical therapy.  He walked fast and steady.  And he did call SOB by name (no, he does not call his eldest daughter “SOB”).  I hope the anti-seizure medication will wear off because it is adding to his confusion.  He seems to remember us by name now.  A few minutes have passed.  Ok, not so much any more. Reflexes: 30%; Cognition: 0.5%; His humanity: steady at 100%.

But wait there is more.  Today, the Kumbaya Guitar Lady/The Singing Nun came by because she heard that Dad likes to sing.  Fortunately, he slept through it.  We, however, could not.

While Dad slept, we spoke with nursing services and got things in order for Dad.

Then I called his long term care carrier.  After one hour of terrible telephone music, only interrupted by being transferred from claims to intake to woman from hell, I learned that long term care kicks in after 100 days of 24/7 care diagnosis.

“So, if Dad is still alive, we’ll talk,” I said.

“Oh, no, someone will contact you in 5 business days to go over everything we just went over.”

“But we just went over everything, didn’t we? And what if I am unavailable when the  call comes?”

“No problem, m’am, you can schedule the call.”

OK, I thought, let’s schedule a call for a hypothetical need that 3.5 months from now and they won’t pay the full freight. “Great, mornings are best for me —“

“Oh, no, m’am,” she interrupted, “you can’t schedule with ME.  When you missed the first call, you can call back to reschedule.  But we promise that we will make the first call within 5 business days.”

Oh, great.  “Take your time, really,” I said.

It was 5 pm on a Friday and the private nurse service hasn’t called.  So I called the service.

“Your call is important to us so please continue to hold, or if you would like, leave a message and we will return the call in 30 minutes.”

Really?  Nah.  So, I wait on the line.   After hearing those words not less than 9 times, I have imagined that the recording said, “if you are a patient and have died while waiting for us to answer, please accept our condolences.”  Actually, they were lovely when I finally reached a human.

So now we need to have someone manage the care that Dad needs.  A house manager, as it were.  We can sit with him and talk to him and feed him, but fill out the forms?  Are you kidding me?

So, SOB, POB and I chat while Dad is sleeping.  We discuss that HOSOB should bring the painting that Dad critiques and tell Dad that he won’t change the size of the car in the street scene.  Just get it off his chest.  Or maybe HOSOB can tell Dad about the dangers of fracking, because while we agree with him, we don’t need the details.  At least not now, when we can only focus on Dad and, possibly, showering and brushing our teeth.

BOB arrived and we sat with Dad through dinner and for a while afterward.  Dad was awake but confused.  BOB got to do the manly things that we girls hesitate to do so as to give Dad some privacy and dignity.

Sidebar:  BOB asked Dad if he was sleeping well in the hospital, and Dad nodded yes.  This surprised BOB because unfortunately he has been hospitalized a few times and can never get a good night’s sleep.  SOB offered matter-of-factly, “sleeping well in a hospital requires a brain injury”.  We say the craziest things when we have to wear hair-nets and sterilized robes, while sitting on in our Dad’s room in the ICU Burn unit because there are no beds in regular ICU.  All these plastic surgeons running around and my father is in bad shape and I have to stop from thinking, “should I ask someone about my droopy eyelids?”

So, what have we learned today: brain bleeds are bad but if you have one you can sleep soundly in a hospital and everyone looks ugly in hair-nets.  Was this knowledge really necessary? Nooooooooooooooooo.

I always worried how Dad would die.  But I never worried that there would be anything left unsaid.  I am lucky that way.

Something. Anything.

Some days (ok, weeks), I feel in suspended animation, waiting for a sign, a direction, something.  I don’t think it is just me alone; the news, the economy, the pundits all talk about uncertainty and the absence of bold action.  Universal stagnation.

The Eurozone has been on the verge of collapsing, or recovering, for months.  Every day, European leaders are frantically accomplishing nothing while “contagion” threatens to spread.  

And who let Cyprus into the euro-zone?  Aren’t Greece and Turkey still fighting over that island?  Does it really need a bail-out or did it just get in line because it didn’t want to be left out of all the fun?

And, of course, we on the other side of the big pond are frightened and our markets volatile and businesses unsure. 

So we sit.  And we wait.  This is like watching a documentary on the Black Death Plague in slooooooow moooooootion. 

And the Supreme Court doesn’t often hand down a landmark decision that also tosses a curve ball into a presidential election (ok, other than in 2000) and so the Supremes are teasing this out to the very last day.  Ok ok ok, Messrs. and Mses. Justices, we all agree that you are so fabulous and powerful.  Now, give us the f%@#ing decision, ok?

So we sit.  And we wait.  And I wonder why some of the Justices don’t like broccoli so much, and why that seems absurdly relevant to the court decision. 

And then there is Taxmaggedon: the economic cliff that our nation slides off on January 1, 2013.  We spent too much on our national credit card and still no one wants to admit that, first, we need to pay the bill and, then, we can shoot the spendthrifts.

So we sit.  And we wait.  And I wonder why every event has to have a catchy (or actually not-so-catchy) name in order to signal that it is a big deal.  Taxmaggedon is apparently catchier than “elected officials not doing their jobs and compromising for the good of our nation and our economy”.  I think “Operation Nero” might be better, althought Congress is playing with something other than its collective fiddle.

And then there are Syria and Iran.  Syria has a vague “window of time” until it implodes with civil war.  Iran has a vague “window of time” before it can explode a nuclear bomb.  What should we do?  And when?

So we sit.  And we wait. And what does a window have to do with time, anyway?  And if it turns out we blew that window with Iran, do I really need to keep saving for retirement or going to the gym?

I could go on.  (No, really, I could.)  And I fear that either the resolutions that won’t come or, if they do, they give rise to more questions and more uncertainty.  

Sooo, I’m sittin’ and I’m watchin’ and I’m waitin’ . . . .

 

Life Imitating Art

Life Alert.  Remember when the company roared onto the home health care scene with the commercial about an old woman on the ground and yelling in a very nasal grandma voice, “I’ve fallen and I can’t get up”?

That commercial went viral — as much as it could in the 1980s before YouTube.  The Company went so far as to copyright that line.  Today their commercials are more respectable and less kitschy.  Still, they are morbidly amusing until you have to send away for information on the product.

In order to keep Dad in his home on his own, we needed to get Dad the life alert system.   Because we absolutely want him to have a hands-free intercom into which he can yell if HE has fallen and can’t get up.

Life Alert still has its quirks.  One of the selling points for the product is that there is a total refund if the person dies within 3 years of signing-up for the service.  No questions asked. Other than maybe, “may we see the death certificate?”  So, actually, at least one question asked.

Sounds like a stupid business model, since people who get Life Alert are not in the best of shape when signing-up for the service.  What will that person need with the money?  The person is DEAD.  Maybe the company banks on the fact that no one will remember about the money-back guarantee.  I guess it is a shrewd calculation about the probability of dementia afflicting the survivors rather than the probability of an aged, infirm person surviving another three years.

I went to Dad’s house today to have lunch and to try to reintroduce him to the Internet.  About once a month, we try this.  He doesn’t type well, so he is unlikely to send an email.  He can’t get the hang of the left click/right click, one-click/two-click protocols even though he was previously able to navigate them.

We spent an hour practicing getting in and out of Google, getting in and out of email, etc.  He would set up the email and I would type for him.  Then he would click send a few extra times.  We sent (mostly unintentionally) multiple emails to SOB and BOB.  They responded.  Uh oh.  Now what?  “Dad, do you remember which is the reply icon?”  He nodded.  “Great, now click.”  “Dad, click once.  ONCE.  only ONCE.  Ok Ok ok ok ok ok ok. Let me get us back to the right screen.”  And so it went.

SOB emailed me, “I am plunking down a cool million that by tomorrow he will be blaming something about the computer that is not allowing him to send or pick up his emails.”  So, I called Dad and said, “remember to try again a few times tonight to make sure you have the email and Google thing down.”  Either he will declare defeat tonight (and then I win the bet) or he will make it work and not try again until Monday (in which case I win the bet).  Insider information.   SOB uses her powers for good.  Me, not so much.

Time for a nap.  Tomorrow, POB, SOS and I are taking Dad to the Met to look at the new American Wing.  More bloggable moments.

July 1

July 1.  Day of doom.  Why, you ask?

Because, all over the country, newly-minted graduates from medical schools are in hospitals and each is called “doctor”.  Enough said.

SOB (sister of blogger) is an attending physician at a hospital and the head of the medical intensive care unit.  Each year I offer to have a talk with anyone she deems a “007” (licensed to kill) about other potential career paths.  It is my annual charitable event; I think of it as saving lives.  Every year, she demurs.  No one is quite the Austin Powers version of James Bond.

But the offer still stands.

When TLP (our son, the little prince) was born, it was July 11.  The interns were 10 days old.  POB (partner of blogger) had to have an emergency Caesarian.  In order to get to the baby in a Caesarian procedure, a lot of organs need to be taken out of the way.  So when TLP was born and I heard the OB-GYN say to the intern, “where would you put the uterus?”  I offered, “back where it belongs!!!!”

If it is July, don’t ask for just any doctor.  Ask for a REAL doctor.

From Ben to Bust in 234 years

Benjamin Franklin, a rock star of his generation, said, when signing the Declaration of Independence, “United we stand, divided we fall.”  Our founding fathers and the colonies, united, defeated a great and mighty empire.

Throughout our brief yet notable history, the cities of our nation were known for the dog-eat-dog way that fellow citizens treated their neighbors, eschewing the cornerstone of religious faith, all the while claiming to be part of the most upright of Christian nations.  But, outside the cities (or so I would like to think), neighbors helped each other and generations of families lived together, all working to keep everyone afloat.  Maybe it is the romantic myth of the heartland.  But, I am buying it, lock, stock and barrel.

Today, we live in a society where people are more worried about their morning lattes than they are about ending our two wars, reducing our crushing debt and the stopping all politicking, all of which threaten to bankrupt out nation.

There is no silver bullet cure for our woes.

I heard today that people say that the Congress should not have saved the 300,000 teacher and firefighter jobs because their unions are too strong and teachers earn too much for doing too little.  Ok, so, make the unions feel some pain, but does that justify keeping the Bush tax cuts for the wealthiest Americans?  The illogic is frightening and delusional.

So the great experiment started in 1776 is rounding the drain because of greed and me-first-middle-and-last mind think.

Well, I don’t know about anyone else, but I will forgo my Bush tax cut that I never wanted and didn’t need to pay for health care and to start reducing the deficit.

How about this:  we make giving up the tax cuts voluntary.  Just like the optional $1.00 gift to Wildlife Preservation (or is it public campaign finance?) on our tax forms.  Just put a line item on the 2010 tax return that says, “This is how much more you would pay if the Bush tax cuts lapsed.  Do you want to pay this amount (a) to reduce the deficit, (b) to pay for health care for the uninsured or (c) 50% to each?” and publish the list of people who contribute to these funds.

Maybe neighbors will embarrass neighbors into paying the money (because if you’re not on the list, either you’re selfish or you don’t make enough) or we have a pledge drive and use positive peer pressure.

Either way, Mr. President, I am with you for letting lapse the tax cut I never wanted and our nation couldn’t afford.

Change of Venue

SOB (sister of blogger) came back from visiting her in-laws and wanted us all to come over for Sunday night dinner at her house.  The usual complement of the family showed up.  POB (partner of blogger) was happy for the night off from cooking.

As I was helping my sister, I had occasion to open her refrigerator.  This is what I saw:

Nothing else on that shelf in the refrigerator.  Without these cans of non-nutritive and non-food particles, you could sleep in that refrigerator.  I was amazed and therefore, I had cause to investigate further and I found this in the freezer:

I was a little shocked to see all of this ice cream and sorbet especially when she said she went out especially to buy vanilla ice cream for my son.  Really?  Really? You mean you didn’t pick up vanilla by accident while you were buying in bulk??  Or maybe the neighborhood store threw a vanilla in your order because as part of a customer rewards program? In all that ice cream and sorbet, there wasn’t already vanilla?

Then SOB said something that completely blew my mind, as a 46 year-old listening to her 50 year-old sister:  “you can’t imagine how quickly we go through this.” Doesn’t HOSOB (husband of SOB) have a cholesterol issue?  Doesn’t SOB have high blood pressure?

AND, AND, to add insult to injury, SOB is the doctor in the family.  She is supposed to know better.  Because she is an M.D. and has mastered that air of authority, she can get away with saying crazy things.  I loved her comment, “eating fat-free whipped cream is like eating nothing”.

For the sake of family pride, I feel compelled to mention that she went to excellent schools and has incredible credentials.  Because even I, the juris doctor, know that what she was saying was just nuts (which, by the way, you could have had on your ice cream with whipped cream).

My Gynecologist, Dr. Jew

No joke.  My doctor’s last name is Jew.

If only his first initial were A., it would be “A. Jew, M.D.”  That would be the culmination of two generations of Jewish humor.

Except that Dr. Jew is Asian.

Actually, that makes it a satirical culmination of two generations of Jewish humor.

The whole point of the visit was to talk about hormone replacement therapy.  I am not loving some of the effects of aging and since, in this day and age where we think we can cherry-pick out the good from the bad and have it all, I think why not ask?   And besides I read about it in the New York Times Magazine.  The article says it is safer now.  Ahhhh, the Times.  The word from on High.  I know, I know, I know.  Think Valerie Plame scandal.  Think slanted reporting in the run-up to the Iraq War.  Ok, so the Times is almost as reliable as a comic book.

Dr. Jew was so very gentle and courteous when he suggested to me that doctors tend not to base their medical judgments on New York Times Magazine articles.  They like to rely on clinical tests and multi-year studies, like the kind you find in the New England Journal of Medicine.  “That rag mag?” I thought, but did not say aloud.

Look, I get my news from the Daily Show with Jon Stewart.  So, it isn’t a stretch for me to get my medical information from comic books.  Thank G-d I am not a doctor.

And Dr. Jew?  He is a good (Jew) doctor.

Doctor, heal thyself

The urologist who put up a sign saying, “if you voted for Obama, go somewhere else,” got his information from the Internet and . . . wait for it . . . it was misinformation.  We did not “misunderestimate” him (my favorite moment of the otherwise bleak Bush years).  He was flat-out wrong.

The Internet is an amazing tool.  It also must be viewed in its context.  Opinions — informed, ill-informed and maliciously disinformative — are out there.  It is up to each person to glean the facts, evaluate the sources and come to one’s own conclusion.  Just because I can write an opinion that you might read doesn’t mean that I am right, that I have all of the facts or that, quite frankly, I am interested in the truth.

Everyone is entitled to his or her own opinion, but that doesn’t mean that each opinion deserves equal weight.  I spoke to a tea party goer about a year ago that heard on an unnamed “news” station (ok, FOX) that the health care bill would give social security benefits to illegal aliens.  Ok, let’s set aside the fact that we are not talking about E.T., The Extra-Terrestrial, or Martians, and that they are humans deserving at least the catch-all phrase of “illegal immigrants”.  I asked this woman if she ever dealt with the government.  She asked me to get to my point.  I responded that even if President Obama were seeking to give away the money in the Treasury (which he can’t because there is a 3 trillion dollar deficit), that the government needs a social security number to take any action with respect to a person’s benefits.  So if someone doesn’t have a SSN (let’s assume that an illegal immigrant hasn’t stolen one because why impugn someone who is seeking a better life here, while there are native born executives of Enron and Madoff enterprises who have committed heinous crimes and haven’t yet had their days of reckoning), then it is impossible to give that person social security benefits.  The commentator was either mistaken or intentionally misleading.

Ok, let’s be honest.  MSNBC is slanted the other way and sometimes uses inductive reasoning — basing a hypothesis on one fact — and gets the whole analysis wrong.  For me, sometimes, it is analogous to watching a show about law or maybe a doctor watching ER or Grey’s Anatomy.  It strains credulity and sometimes is farcical.

However, when I realized that I paid more in 2009 taxes than most, non-celebrity, tea party-ers pay in two decades, I realized that I put my money where my mouth is.  I believe in universal health care, medicare and a safety net for those like my grandparents who slept at night knowing that, if they lost their jobs in sweatshops, their children would not starve.  As a child of those children — the embodiment of the American dream — I pay my taxes for those like my grandparents and my parents, and not for the ungrateful masses who are the tea-party-ers.  Why?  Because this is America, the greatest nation on Earth.  But if you don’t want to buy in, that’s ok.  But there are consequences.  How about we mess with your medicare?  Would you be partying then? I hope you get along with your neighbors because if I join your group, there won’t be money to pave the roads outside your homes.  But because of my belief in America, and my indebtedness to my forebears, you get to be parasites sucking on the dream of America.  To tell you the truth, I cannot wait to heave the yolk of your entitlement of my already heavy burden.

How about that?  Let the generous, gentler and kinder America (thank you, Bush I) reclaim what is America.  I live America — I work hard, I pay my taxes, I pray that the government is good, right and just, I do not believe in torture and I give charity to those who need help to jump start their lives.  Yes, what Jesus would do.  And I am a Jewish, lesbian, Ivy League educated, Northeastern elitist.  And I embody the promise and opportunity of America more than most of the greedy, uncharitable, talking heads that pollute our airwaves.

Bring it on.

The Health Care Debate

Let’s just hold this space for my rant, once I get it under control.  Setting aside what you believe, there are people in the country who have behaved so abominably in the tactics they used and the violence they unleashed.  And they are maybe worse than unpatriotic, because what they did undermines our system of government and our society.  I believe that these people are traitors to our nation and its government because they want to win at all costs, without thought to the preservation of the union.  In contra-distinction, those opposed to government action under the Bush-Cheney years did not physically and verbally attack lawmakers who put us in debt for generations, have rifle scopes put on where lawmakers live, and say things like, “you’re a dead man!”

Sen. McCain wants to repeal some of the very things that were part of his platform, until he changed with the direction of the wind.  Some maverick.

Many of our representatives have breached their oaths of office.  And in the process, they have stoked class warfare and racial distrust and enabled fringe groups to deny the legitimacy of Barack Obama as president of the United States.

But, still, I haven’t gotten my thoughts together yet, so stay tuned.