What Did Grandpa Know and When Did He Know It

Dad’s world is closing in.  He can understand some things.  But, he no longer tries to understand the intricacies of his care, his insurance, etc.  He refers any material matters to his children.  I think that is freeing for him, even as it is an admission — a resignation — that he can’t navigate the bigger world anymore.  We are here to catch him before he falls.

But at my son’s Bar Mitzvah, when he slowly came to the Bimah and — relying decades’ old some-kind-of-muscle memory — chanted the prayers before my son read Torah, I imagined that Dad understood that his grandson was being called to Torah as a Bar Mitzvah.  Linking the past with the present.  From generation to generation.

My son did a magnificent job, by all accounts (including mine).

Dad was in and out of reality during the day. He enjoyed dancing at the reception, as always, cutting up the floor.

But did he understand what happened?  Did he understand that his grandson accepted his birthright to become a Bar Mitzvah? To hold the Torah and read from it?

In my mind, I said, “Of course, Dad knew!”

But I had no idea.

Then my son said to me, days later, “Grandpa didn’t understand what happened at my Bar Mitzvah, did he?”

“Dude, I think he did, in moments, but I am not sure that he always understood.”

Silence. Resolution. Generational connection lost.  I could feel it in my son’s look and posture.  I felt a desperation to keep the connection alive.

Today, I asked his health aide (who was with him at the Bar Mitzvah), “Tell me for real, FOR REAL, did Dad understand what was happening at the Bar Mitzvah?”

“Well, this week, he told the visiting nurse how his grandson read from Torah so beautifully!!  Some days the light is on and others he is a little in the dark.  But he knew it then and sometimes he knows it now.”

And that is all I need.  I hope it is enough for my son.

A prayer for my son on his Bar Mitzvah

The rabbi told me we needed to bless my son on his becoming a Bar Mitzvah, so, my voice trembled as I gave him this blessing:

My dearest child:

You are a young man now.

Where does the time go?

And you have your own mind about things. I remember when you were 6 years old and you said, “I have to disagree with you, Emom”. And I said, “no, no, I don’t think that ever needs to happen.”

Well, you are a young man now.

NOW, you can disagree with me, but you will still be WRONG.

I admire so much in the person you are already and three things in particular that I think will form the person you will become:

Your insatiable curiosity and quest for learning about people and the world – near and far, existing and ancient. From the Mughals of Middle Age India to today’s German Muslims learning about the Holocaust.

From every fact I never knew to every one I have already forgotten.

Your boundless imagination – it is a place where the impossible is routine and miracles happen.   You are able to see the world in ways unconstrained by the so-called common wisdom and societal strictures.

You see unending possibilities where others see insurmountable road blocks.

Your gentle heart – this is truly the treasure of you.

It is what makes you, you.

Yes, you will have your own mind about the world, and it will be guided by your curiosity, imagination and heart.

May they guide you on a meaningful life journey filled with joy, with wonder, with hope, with laughter and with peace.

I love you more than you can ever know.

True North On the Road to Siberia

I have been generally quiet these past few months about Dad.  Out of respect for him and his privacy.

But, let’s be honest: a mouth as loud as mine can only be still for just so long.

Today’s events are par for the course for so many of us.  We try to preserve our parents’ dignity, by putting cash and credit cards in their pockets and remotely monitoring the financial doings, ready to step in at any sign of trouble.  We also hire lovely, underpaid people to handle our parents so that we don’t have to give up our lives to care for them.  One such lovely person left Dad alone for 10 minutes while she changed over the laundry.  He didn’t leave the apartment (thank G-d) but when she came back, he was on the phone giving his credit card number to someone.

REALLY, Dad?  Really, Heather?  Heather, can you just take him with you to the laundry room?  Dad, could you just speed dial your children instead of handing over personal information to anyone who calls?

Ok, Heather invokes the Blogger family data breach protocol, which means she calls the daughter least likely to curse, but also least likely to know what to do.  And that sends the cell towers buzzing.

Ring, ring, ring, on my cell.  “Hey, [SOB — sister of blogger]!” trying to sound cheery even though I know that a call during the day at the office cannot be good.

Ok.  So, Heather calls my sister who calls me.  I decide not to call my brother, BOB, because, while creating a national frenzy has some appeal (he lives pretty far away), I have the information to handle the data breach.  And why give another person indigestion?  [BOB, sorry you are reading this on my blog, but if I told you, in real time, you would have (rightfully) invoked Blogger family LOCKDOWN protocol, and that would have really sucked.  Besides, I am redecorating the bunker.]

First credit card:  only an endless loop of robotic voices.  But I got it cancelled in less than 20 minutes.

I know what you are thinking, Blogger is a rock star.  She is making this elder care seem like a walk in the park.  And I am so feeling the need to put on my sunglasses on a cloudy day in New York.

Second credit card:  Same company.  This time a real person.  Whoa.  This will be a cake walk.  I need darker shades because my light is so bright.

“I am sorry, but your information appears nowhere on this account.”

“I have power of attorney.  I have had it for years.”

“I am sorry but we need your father on the line.”

After much back and forth about the information on the customer service computer screen and the facts of life, I conference in Dad.

It was the crazy ordeal you would expect.  Heather got on the phone to make sure it was ok that Dad was talking on the phone about his credit card.  [SOB, she redeemed herself.]  Dad did what he needed to do and then hung up.

“Ok, we can cancel this card and issue a new card, but I will have to ask you a few questions.”

I am soooo ready for this. Sunglasses on. Check.

“What are the first three letters of your father’s mother’s maiden name?”

“ITZ”

Silence.  It had to be right because I used it to cancel the card with robot customer service.

“That is not correct.”

What is this?  F#$%ing JEOPARDY?

“Itzik or Itsik.  It is my grandmother for Goodness sakes!! Itzik  Itzik  ITZIK

Itzikkkkkkkkkkkk. Or it could be spelled with an “s” I suppose,” said I meekly.

Silence.

And it worked for the efficient robotic customer service that canceled my other [Bank name] card in a snap.

Yep, I threw it down.  Hard.  I can be (sort of) charming and then, presto, like a light switch, not so much.

What am I, an idiot? [DO NOT answer.]

“You will have to answer the following [trick] questions so we can verify that your father’s authorization was really to his daughter and you are in fact his daughter and he is in fact the card holder [and totally mess you up and enjoy doing so].”

“I am not charging anything.  I am trying to cancel something. But, ok, ask.”  I shouldn’t have added that verbal swagger at the end.

What am I, a schmuck? [DO NOT ANSWER.]

“I am sorry but you answered one or more questions WRONG.  I will need to conference in a security adviser.”

Brief hold with bad music.

“M’am, I have another person whose job it is to make your day miserable.  She will need to speak to your father again to authorize this next level of security.”

Are ya kidding me?

“It would be too confusing for him.  Aren’t there super-secret decoder ring-type questions you can ask me?”

“No, m’am.  We need to speak to your father.”

“No, you will not.”  And hung up.

What am I, the stupidest person ever? [DO NOT ANSWER. ZIP IT.  ZIP IT.]

It was too much.  I could not say why I needed to cancel the card.  I was trying to gloss over my dad’s infirmities.  I was trying to protect him.  And me.

So, what did I do?  I threw my phone against the wall and cursed in frustration.

DO NOT SAY IT. BUT, YES, YES, I AM.

True North

Dad is quite insistent that he needs to decamp and go north for better lodgings.  He has gone so far as to pack a bag.  Out of respect, I don’t look at what is inside. Who am I kidding?  For my sanity, I don’t need to see more evidence of Dad’s profound deterioration.

It could be that he wants to go to the Bronx of his youth.  Or our country house of my youth.  The house in the Berkshires always made Dad happy (we hated schlepping there on the weekends).

Others with deteriorating parents have also remarked on this restless need to be somewhere else.

But, I don’t think it is wistful remembrances of important landmarks.  He fabricates tales of his travel exploits.  Some involve having luggage stolen, getting lost, being at the mercy of people of questionable integrity, etc.  All quite harrowing.

And all profoundly disturbing and distressing for his kids and caretakers.  Dad is not flummoxed in the telling of these tales — like a detached (and unreliable) narrator.

Maybe a metaphor for his descent into dementia.  Maybe he is trying to tell us that he is being robbed of his mind.  That it is being wrestled from him.

And that he is powerless to stop it.

And, Dad, we are powerless, too.